Pulse Center for Patient Safety Education & Advocacy

Patient and family involvement

No Date                                                                                                                                                                                                                                         Ask a family member or Friend to go with you. Even if you do not need help now, you might need it later (#17)


 No Date
Families have been included in rounds in the ICU at Lourdes since early 2004, and Fuchs says it has worked well, saving nurses time and making patients and families happier. “The more they know, the better,” she says. For especially complex patients or situations in which daily rounds are not sufficient to cover the patient’s and family’s needs, separate patient care conferences are scheduled for families with all the relevant specialists.


No Date                                                                                                                                                                                                                                         Patient and family engagement is an area of increasing importance for hospitals. Not only is engaging patients and families and providing patient- and family-centered care the right thing to do, but also the many individual benefits of patient and family engagement work together to contribute to improved hospital performance.


No Date                                                                                                                                                                                                                                         Social Isolation is a risk factor . . . Research is clear that isolating patients at their most vulnerable times from the people who know them best places them at risk for medical error, emotional harm, inconsistencies in care, and costly unnecessary care.1,2


August 2019
In the July 16, 2019, issue of Pharmacy Practice News, ISMP president, Michael R. Cohen, published a noteworthy commentary about what healthcare consumers can do to help prevent medication errors.The inspiration for the commentary arose from significant dialog and questions received in response to articles ISMP published in this newsletter in early 2019.​


July 2019
You likely heard about this incident in the news earlier this year: A woman died after receiving the paralyzing agent vecuronium instead of the sedative midazolam (Versed, discontinued brand) when the wrong medication was retrieved from an automated dispensing cabinet (ADC).


December 2018                                                                                                                                                                                                                                                                      Rounds often happen without directly involving the patient—or more importantly when the patients are children, their parents. The program, named I-PASS (see box below), aimed to flip that by creating family-centered rounds. The program created checks to ensure that rounds include patients and parents, that medical staff discuss all important elements of care each day, and that parents receive write-ups of daily rounds. It also provided training for staff to learn how to facilitate family-centered rounds.


June 2018
Rudy Giuliani’s wife discusses her partnership with her husband during his prostate  cancer journey and their team approach to the experience.


February 2018
Alongside clinical imperatives, strong patient engagement can supplement patient safety initiatives in the hospital.


January 2016                                                                                                                                                                                                                               Patient- and family-centered care (PFCC) is changing the way hospitals provide patient care, increasing staff satisfaction, decreasing costs, and improving patient outcomes


​May 2016                                                                                                                                                                                                                                                                                                In recent years, there has been a shift toward a greater role for patients in health delivery. We are all aware of the greater focus on shared decision-making, patient satisfaction scores, information on provider price and quality to patients, and the use of incentives embedded in benefit design (such as high-deductible health plans) that put the onus on the patient to behave like a consumer and assess the value of different health services they could receive.​


July 2015
Issue Brief: Patient and Family Engagement: A Partnership for Culture Change A Report of the NCIOM Task Force on Patient and Family Engagement
Patients who are actively involved in their health and health care tend to have better outcomes and care experiences and, in some cases, lower costs.

2015                                                                                                                                                                                                                                                 In this commentary Brian Boyle raises a simple, yet critical point about the value of family in the care experience. He offers, “When you are focusing on the goals for the patient's recovery, the doctors work with the nurses, specialists, and patient’s family to decide on the appropriate care plan for the patient on both a short- and long-term basis. It is vital that this multi-disciplinary approach occurs during the formation of the care plan and is frequently updated as time goes on.


February 2013                                                                                                                                                                                                                                Patient engagement is an increasingly important component of strategies to reform health care. In this article we review the available evidence of the contribution that patient activation-the skills and confidence that equip patients to become actively engaged in their health care-makes to health outcomes, costs, and patient experience.


February 2013
People actively involved in their health and health care tend to have better outcomes--and, some evidence suggests, lower costs.A growing body of evidence demonstrates that patients who are more actively involved in their health care experience better health outcomes and incur lower costs. As a result, many public and private health care organizations are employing strategies to better engage patients, such as educating them about their conditions and involving them more fully in making decisions about their care.


2009                                                                                                                                                                                                                                                                                            Patients and their carers will usually be the first to notice any observable problems resulting from medication errors. They will probably be unable to distinguish between medication errors, adverse drug reactions, or ‘side effects’.